I’ve been feeling hot all day but not actually been hot, guess my temp has broke out now, I was hoping to avoid antibiotics but the throbbing flank pain is getting worse even with my round the clock painkillers. With my current health state I don’t think it would be a good idea to hope it goes away on it’s own.
I was thinking earlier on about how angry I am about being ill and how one illness leads to another, like when your run down your more prone to infection or that your so ill you need to sleep all the time but by sleeping so much your missing out on fluids and end up with a kidney infection. It’s a horribly vicious circle and once your in it it becomes a maze with lots of dead ends.
As a nurse I always try to think how a patient feels and sympathise with their situation, but it’s only now as an “ill person” that I’m realising ill people feel just the same as everyone else, they do think something of taking 30 tablets a day even if they have been doing it for years, it doesn’t mean “their used to it” or when you hear that Mrs Jones now has a uti you might think “oh she gets them all the time” or “she’s always got something wrong with her” maybe they do but it might still take them by surprise, if like me they still don’t see themselves as a chronically ill person they might feel angry and wonder when it’s all going to stop.
How can patients have hope and positivity if they “give in” and assume these things will happen. If anything good has came out of this illness bout (can I still call it a bout when it’s been over a year ?!) then it will be the ability to not just sympathise with patients but empathise.
So to end this on a positive note, only 10 more mins till paracetamol time 😀
This is what happens to my stomach when I eat, the above picture is 20 minutes after eating a small child size bowl of soup 😦
I’ve had digestive problems since I was a teenager and diagnosed with IBS, always more on the C side :O After I had the youngest child 5 years ago things went downhill, due to old style antidepressants they put me on because I was breastfeeding I put on 3.5 stone in A MONTH! I also sat like a zombie staring in to space most of the day, needless to say I came off them pretty quickly!
I’ve never lost the weight again and over the past year I have had lots of new symptoms such as heartburn, acid relux, cramps etc. Then this strange pain started on the right side too which landed me in hospital last month, they thought it was gallstones at first then ruled that out so did an endoscopy which showed the delayed gastric emptying (I had fasted for 14 hours and still had food in my stomach!) and a high degree of bilary reflux from the duodenum. They said this didn’t explain the pain I was in on the right hand side and didn’t give me much information on gastroparesis apart from telling me to avoid fat and fibre and started me on domperidone to increase the motility in my stomach.
So back to the hospital it was last week for the HIDA scan to check the function of my gallbladder, I’m not sure when I will find out the results, I don’t see my surgeon until January but see my GP on Monday, to be honest I’m not that worried about the pain on the right side now, it is sore when it happens but at least if it is my gallbladder then it can come out.
I just don’t know if and when I will be able to tolerate solid food again, I’ve been living off complan meal replacement drinks and yoghurts, I’ve lost about 18lbs in the past 2 weeks which is great as I have plenty to loose! but I have no energy most of the time and feel rotten. My GP suggested fitting an NG tube but I feel it’s way too soon for that kind of measure, but if I can’t even have a small bowl of soup then what chance have I got 😦