Another day in my life….

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Today was a bit of a shiter, I had the district nurses out last night to give me diamorphine thanks to my lovely GP who prescribed me it over the phone for my gallbladder issues. I got to spend a few blissful hours pain free for the first time since I had been discharged, this morning was so so, I had the house to myself for a few hours and watched some rubbish day time TV then tried to doze for an hour but the kittens were being noisy and I kept waking up.

After I gave up napping the pain started to appear again I also had the issue that I hadn’t been well enough to pick up my prescription for my AD’s and beta blockers so my mood was becoming viler and my anxiety was through the roof. I was worrying about being well enough to walk to pick the kids up as the BFG had my car and was caught up taking someone to the hospital. I needed my meds asap!!

The BFG eventually got back, I got the meds, the kids were home but boy the pain was wicked! The problem is I’ve tried most painkillers, at the moment I’m on DHC, paracetamol, mebeverine for pain then I have tramadol but I’ve to try not to mix them all, even when I do it doesn’t take all the pain away, the most I get it “taking the edge” off it. If I don’t get my scan results tomorrow I’m phoning the hospital again. I’m in as much pain as I was when I was admitted and discharged, I’ve thought a couple of times of getting re-admitted but I’ve lost faith in the medical profession, Perhaps it was just the ward I was in but I don’t want to go through that again, which reminds me I need to finish off my complaint letter.

So I’ve been given flucloxicillian for my kidney infection, which is most likely a result of dehydration and/or vomitting, just another bloody pill to add to the pile.

I don’t know how I “cope” with everything, do I ? What would not coping be ? People are always saying how well I’m doing and other comment saying I couldn’t do that, I couldn’t live with that, but what choice do I have, because if there is a way to get out or give up other than suicide please do tell me ? I’m not strong or amazing or great, I’m screaming away inside as my stomach feels like it has hot pokers being stabbed into it and twisted.

And strangely enough as I’ve been typing this the BFF has texted me saying how proud she is of me dealing with all this pain and pushing through the hard bits, she knows me so well, she ever said I know you think others don’t get it but she does (she has back pain troubles) I guess I’m only dealing with it till I find another option…

 

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Dr’s for me in the morning I guess :(

high temp

 

I’ve been feeling hot all day but not actually been hot, guess my temp has broke out now, I was hoping to avoid antibiotics but the throbbing flank pain is getting worse even with my round the clock painkillers. With my current health state I don’t think it would be a good idea to hope it goes away on it’s own.

I was thinking earlier on about how angry I am about being ill and how one illness leads to another, like when your run down your more prone to infection or that your so ill you need to sleep all the time but by sleeping so much your missing out on fluids and end up with a kidney infection. It’s a horribly vicious circle and once your in it it becomes a maze with lots of dead ends.

As a nurse I always try to think how a patient feels and sympathise with their situation, but it’s only now as an “ill person” that I’m realising ill people feel just the same as everyone else, they do think something of taking 30 tablets a day even if they have been doing it for years, it doesn’t mean “their used to it” or when you hear that Mrs Jones now has a uti you might think “oh she gets them all the time” or “she’s always got something wrong with her” maybe they do but it might still take them by surprise, if like me they still don’t see themselves as a chronically ill person they might feel angry and wonder when it’s all going to stop.

How can patients have hope and positivity if they “give in” and assume these things will happen. If anything good has came out of this illness bout (can I still call it a bout when it’s been over a year ?!) then it will be the ability to not just sympathise with patients but empathise.

So to end this on a positive note, only 10 more mins till paracetamol time 😀